Rest, Resistance, and Advocacy: Navigating the Complexities of Chronic Illness Through Art and Community Support

Rowan Crawfish is a counselor and art therapist based in Georgia, offering person-centered and empowerment-based counseling for diverse populations. She specializes in social justice work, trauma processing, advocacy, and uses a range of techniques, including art therapy, mindfulness, and somatic therapies. As a 2SLGBTQIA+, chronically ill and disabled, fat, neurodivergent, secular therapist, she strives to provide an inclusive and judgment-free environment for individuals of all sexual identities, genders, abilities, races, ages, and body sizes. Whether you’re struggling with body image, living with chronic illness or pain, or just need support navigating life’s challenges, she’s here to help. No experience in art is needed to work with Rowan.

Find Rowan’s therapy information here.

Find Rowan’s personal creative endeavors on her etsy shop here.


I interviewed Rowan on The Chronic Illness Therapist Podcast about her work with chronically ill and neurodivergent folks who find themselves without hope and with high levels of anxiety and/or depression. 

Rowan shares that a lot of her work with clients is around “making invisible illnesses visible and showing doctors what symptoms look like and feel like… moving away from the zero to 10 pain scale, and giving people an opportunity to really express what the inside feels like” is an important aspect of the therapeutic work.

What is Photo Art Therapy?

Photo Art Therapy is based on the idea that taking pictures of something important in your life and then using words to describe the emotional impact of that photograph can “contribute to the development of [relationship] skills, manage behavior, and increase self-esteem and self-awareness.” (source

Rowan likes to use Pixlr or Photoshop with clients to help them create collages that put their words and experiences into a visual representation. While this particular modality isn’t accessible to people who have low vision or are Blind, it is accessible to people who “have a hard time navigating tools for [other] fine art [modalities],” Rowan says.

Sometimes people utilize photos from hospital stays, medical procedures, MRIs, and more. This beautifully captures our experiences as people in the medical system who often feel unheard, unseen, dismissed, and even gaslit by the very people who are supposed to be taking care of us. 

It really gives people an opportunity to show what they’re feeling every day, what parts of their bodies are affected, and what their daily experience living with [their condition] is like.
— Rowan on Ep. 69 of The Chronic Illness Therapist Podcast

Another technique she often uses is a body scan. She says, “Sometimes we do body scans where we walk through all the feelings and sensations [one is experiencing] and then we create textures and colors and images to show where all those sensations are on the body. And then everybody in the support group I run gets to share [about their experience]. We [explore] things like worst symptom days, best symptom days, [etc.].”

Decolonizing therapy

Rowan’s approach to therapy is one that is anti-oppressive. 

Decolonizing Therapy is the book title and a term coined by Jennifer Mullan, a highly influential speaker and organizational consultant who has been teaching us all about the impact that colonialism has had on our field of mental health.

For example, did you know that in many states, attempting suicide is against the law? That means that if someone attempts suicide and survives, they can technically be arrested and jailed. That’s incredibly disturbing, in my professional opinion. If someone no longer wants to be alive, they need help and support; not incarceration. 

By examining the historical context and current manifestations of colonialism, we can begin to understand the systemic issues that perpetuate inequality and marginalization within therapy.

Rowan shares, “I'll often help clients see where the systems are at play so that they can better advocate for themselves. [We work on] actively breaking down systems of oppression in their day-to-day.”

In the interview, we also acknowledge that we as therapists must be highly aware of how colonialism, white supremacy, and racism show up in our theories, beliefs, and policies.

For example, our Western psychology theories completely neglect cultural context and often pathologize very normal and reasonable cultural practices. 

Additionally, our mental health diagnoses continue to be discriminatory, especially to marginalized groups, and having a diagnosis usually incurs unreasonable consequences, like being denied private health insurance and/or being sent to mental institutions claiming to “help and rehabilitate” but usually end up doing more psychological and financial harm than good. (NOTE: Residential mental health facilities CAN be life-saving, but this is very context-dependent).

Additionally, our field tends to demonize any methods of healing that indigenous people rely on until some researcher decides to “study” the method and “validates” that the method works. It’s only after a caucasian researcher deems the method “valid, reliable, and safe” that it becomes part of mainstream methods. To make matters worse, these researchers often just pretend they created the modality and never credit their indigenous peers and predecessors. 

Western psychology is built off of the idea that everyone should be able to individually create success in their lives no matter their situation, yet Western policies and practices also make this near impossible for the typical disabled person.

Rowan explains, “for every intersectionality you have, your experience in the medical care system is [likely] to be worse. So [we have to] acknowledge these things [in therapy by helping] people with advocacy and letters [when applicable, to help clients advocate for themselves].”

“One of the biggest ways we can start to deconstruct [colonial-style therapy] is to move away from [individualistic pursuits] [and to do things] like rest more, reach out to people more, and be yourself as much as you can. [We] absolutely [need to] do less, put the bar on the floor,  just throw the bar in the trash.”

And I couldn’t agree more.


The Truth About Self-Advocacy 

I know first hand how hard it is to advocate for yourself with doctors. 

Self-advocacy is a tricky topic because we shouldn’t have to advocate for ourselves, but we unfortunately do. It’s important to remember that there is a built-in power differential with your doctor, meaning they have the power to withhold treatments, medications, and lab work. I have heard stories about doctors firing patients for asking the doctor to “please document in my chart that you’re refusing to order X lab at my request.”

Doctors aren’t evil or bad people, they’re just as stressed out, in debt, and overworked as anyone else. They do unpaid work constantly because insurance denies claims frequently for the smallest little mistake (that wasn’t even really a mistake) in paperwork. 

A lot of patients don’t know this, but doctors, therapists, and other insurance-based medical professionals can even be required by insurance companies to pay the insurance companies back money that the insurance company already paid out to the clinician. The insurance company can simply send a letter saying something like, “We paid you for these 15 visits, thousands of dollars, but now we’ve decided we are no longer paying for that service code, and you must pay us back.” Not paying the insurance company back has serious consequences for the clinician. 

So now that we’ve laid out what the playing field looks like for doctors, we can start to understand just one of the many reasons that doctors easily move into their power stance when they feel their own threat response turned on.

With that said, we still need to advocate for ourselves. We just have to be kind, patient, and strategic, as unfair as that may be. And that’s why having a therapist to help you through this can be so critical. 

Self-Advocacy Tips

Remember that your doctor isn’t an all-knowing being. They’re human, just like me and you. They have a decade or more of schooling and experience to help them make educated decisions about health, but they’re not magicians. When you take your doctor off a pedestal, you’ll see that they 1) want to help 2) might not know how to navigate getting “stuck” and 3) respond better to direct, kind, and clear communication - not passive communication, and not aggressive communication (although sometimes getting aggressive does get us escalated to someone with more power, and then we get our needs met. Unfortunate, but true.)

Rowan likes to remind people, that “if somebody doesn't have the answer and they don't know how to say, ‘I don't know,’ and instead they gaslight you or make you feel like you're wrong about your body, then it’s time to look for somebody else.” We know that it can be incredibly hard to find new doctors, and that this advice doesn’t work for everyone, but it’s still worth noting that if you have the option to change doctors, then it’s worth trying. 

Trusting yourself and trusting your body and not letting somebody shake that intuitive knowledge that you have [is so important]
— Rowan
  1. Write a letter to practice what you want to say and how you want to say it.

    Rowan’s Art Therapy support groups can help you with this if you don’t know where to start. The purpose of the letter isn’t for you to say verbatim to your doctor during a visit (although maybe sometimes that would actually be appropriate). The goal of letter-writing and art-making is to get more and more comfortable with self-advocacy, to practice it before the main event happens.

  2. Body Scan - body scanning helps you to familiarize yourself with the often uncomfortable sensations in your body.

    This familiarity helps you verbalize your experience better, so that your doctor hears clarity. Doctors tend to become really frustrated by vague language from patients. A body scan not only helps you feel more attuned to your body and it’s needs, it also helps you in your relationship with your doctor. 

  3. Expressive art-making - using artistic techniques 

    Rowan likes to use a lot of photography, music, and dance to help clients express their pain and move into their trust and fullest selves.

  4. Pacing and taking a break 

    Even in your rushed doctor’s appointment, pausing when you need to could be incredibly helpful. You’ll likely have to remind your doctor that you’re not done, but that you need more time to get your words out. Yes, they might get visibly impatient, but that’s where your work in therapy will come in handy. Learning how to say what you need to say regardless of the other person’s emotions and responses is incredibly empowering.

  5. Share art

    Rowan encourages us to not only make art for the sake of processing emotions but to also make art for the sake of sharing it with others. Whether that’s sharing through selling your art or through gifting it to friends and family, making and sharing art is a beautiful way to connect with your community on a deeper level. And if you feel called, the profits you make from selling can go towards medical bills, charity, or donating in another way that makes you feel good and useful.

Rowan shares her adorable crocheted stuffed animals here on her Etsy shop.

Community and Support Groups

I first learned about Rowan after hearing about her support group offers, and I was instantly blown away. It’s been my experience that starting and running groups is difficult, but highly rewarding when it works. So I was incredibly thankful to see the niched groups that Rowan has running.

She runs these amazing groups virtually, through Live Well Savannah, and they’re available to anyone in any state/country:

  • A Chronic Illness Empowerment Group

  • A Neurodivergent Support Group

  • A C-PTSD Group 

  • And a body image group

You can sign up for any of these groups here. 

I’ve created a group for all of my populations [so that] if you don’t want to find community by yourself, or it’s too hard to find community by yourself, or you’re too tired to find community by yourself, [these groups are already here for you.]
— Rowan Ep 69 The Chronic Illness Therapist Podcast

While support groups don’t really take the place of in-real-life community support, Rowan explains, “Why don't you try to meet these people and just start here and see how it goes? And then we can at least model what community looks like before you take your own independent steps that way.”

When we talk about decolonizing therapy, the core of our work turns into building community. Rowan says, “In a lot of the work we’re doing, we aren’t able to dismantle a whole lot, which can feel a little hopeless. But not doing it alone is a [big] part of dismantle work.”

Remember - colonialism thrives off of who can get to the top the fastest. This type of mindset inherently requires doing things alone, tearing others down, and getting to the top, where you will again be alone. Learning to rely on one another is the very antithesis of colonialism. 

Pacing

Another things that colonialism thrives off of is being super productive as often as possible. A normal amount of productivity is a healthy and important aspect of any society, so we don’t want to pathologize being productive, just like we don’t want to pathologize resting, which is what our society has done.

That’s why we talk so much about “pacing and not going through the boom/bust cycle [with our energy], if you can avoid it.” Rowan advocates for taking lots of breaks and being honest with ourselves about where we’re at with our pain, our energy, and our capabilities. For example, neither Rowan or I believe it’s wise to go from barely walking for six months to trying to take a hike. Instead, we’d make the goal to be getting out of bed every day, then walking to our mailbox every day, then to the end of the street, and so forth.

As your body adjusts and build capacity, you can do more. But even as you gain the ability to accomplish more, we still want to be mindful (not fearful, but mindful) about what our bodies want to do and can handle without a huge backlash, which usually comes in the form of a flare up.

In our work with clients, we talk a lot about our values and what kinds of lives we want to live. Figuring this out means putting the end-goals away (like going for a hike) and figuring out WHY hiking is so important to you. Maybe it’s for the fresh air, maybe it’s for time to yourself, maybe it’s for movement and enjoyment, or maybe for socializing.

Your reason for wanting to take a hike is so much more important than the actual end-goal of taking a hike, because we can’t always control what our bodies will let us do. But we can invite the things and people we love into our lives and asking people to meet us where we’re at, rather than trying to push ourselves to meet other people’s capacities. 

And btw, rest can look so different for each of us. As a mom of two kids and working full time, my rest breaks often include

  • Noise-canceling headphones

  • Closing my eyes for 5 minutes

  • Allowing myself to numb out with scrolling and/or TV

  • Taking a walk with no music/podcast

  • And more

These small moments add up throughout the day to help us get through each hour. I talk more about the different types of rest in this podcast here.

Pro tip: always meet yourself where you’re at with learning any new skill, including rest.

If you can’t sit in silence without thinking about what you need to do on your to-do list, that's fine for now. Write down the list, don’t keep it in your head. And over time, you’re going to figure out how to rest more peacefully. At first, it might not be the most restful rest, but this is a skill you will hone over time.

Autonomy is a huge pillar of the way that I practice. And if you don’t want to do something, you don’t have to. [If] you don’t want to talk about something you don’t have to. This is your space, your time. You’re driving the bus. I’m just here to support.
— Rowan

Rowan offers therapy for folks who live in Georgia and support groups for anyone in any state. Learn more here.


Destiny Davis, LPC CRC, is solely responsible for the content of this document. The views expressed herein may or may not necessarily reflect the opinions of Rowan Crawfish.

Destiny Davis (formerly Winters)

Destiny is a Licensed Professional Counselor and chronic illness educator.

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